Writers’ award winner experiences of family members acting as primary caregivers for patients with traumatic brain injury.

Authors: Ishikawa F, Suzuki S, Okumiya A, Shimizu Y
Research on caregiving experiences of families of patients with traumatic brain injuries has been limited to studies emphasizing negative aspects of care. During this study, families caring for patients with traumatic brain injury (TBI) shared their experiences, allowing us to collect basic data about factors related to their psychosocial adjustment. Fifteen primary caregivers were interviewed using semistructured interviews, and content analysis was performed on obtained data. One thousand eighteen recording units were grouped into seven categories: (1) spending time with the patient with TBI and understanding invisible disabilities, (2) evaluating medical professionals’ handling of the case, (3) devoting oneself to caring for the pa…

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